Rosie Higgs, a 29-year-old mother, has shared her remarkable journey of determination and love after being told during her pregnancy that her baby might be born with amniotic band syndrome, a condition affecting limb development. Her son, Henry Higgs, now 11 months old, has become a testament to the power of unconditional love and resilience.
During Rosie’s routine 20-week scan, concerns arose about her baby’s limbs not developing properly. Some individuals suggested she should consider terminating her pregnancy, but Rosie was unwavering in her decision to keep her baby boy.
Despite the initial fears and worries, Rosie’s pregnancy continued, with frequent scans monitoring her baby’s development. Rosie was stressed at times, especially when she had to stop working. However, the birth of Henry, delivered via c-section, brought immense joy into her life.
Henry was born with just one arm and a webbed hand. Although Rosie couldn’t have her supportive mother and partner, Peter, by her side during the scans due to lockdown restrictions, the midwives provided exceptional care. Rosie admitted that not being able to have her mother with her at the birth was heartbreaking, particularly given Henry’s high-risk status.
Rosie’s older children, Alice, 13, and Michael, seven, welcomed Henry with open arms. Their acceptance and love for their baby brother remain unwavering. Rosie said, “Alice treats him like her own baby—rather than her brother. She loves him so much. She’s his second mum.”
Despite his limb difference, Henry is reaching all the milestones he should be for his age. He can lift objects, lift his head, and roll over. Rosie expressed her delight at his progress and described him as a happy and well-behaved baby.
Henry has also undergone surgery at Great Ormond Street Hospital, London, to separate his webbed hand, greatly improving his mobility. Rosie is optimistic about Henry’s future, and she is in discussions with Stanmore Orthopedics about getting orthopedic support for him.
Since Henry’s birth, Rosie has received support from Reach, a charity that assists children with upper limb differences. She expressed gratitude for the charity’s help and the connections she’s made with other parents in similar situations.
Rosie acknowledges that adapting their home as Henry grows will be necessary, but she remains steadfast in her belief that her son will conquer any challenges life presents. Henry’s journey is a testament to the power of love and the unbreakable bonds of family.
